Judy.pheochromocytomasupportboard
- Gender: Female
- Location: NH US
| Total Posts | Last Post | Last Seen | Joined |
|---|---|---|---|
| 1260 | 12/08/09 19:12:45 | 12/08/09 19:12:45 | 08/08/02 |
| Visitors Now | Visitors Today | Most Visits | Total Visits |
|---|---|---|---|
| 0 | 0 | 10 02/04/09 |
115 |
My favorite sites
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My Bio
One son w/single pheo removed 3/99 (age 12): and diagnosed 8/06 with metastatic pheo. Also, another son diagnosed w/metastatic pheo 5/00 (age 23). Lost aunt
and cousin of metastatic pheos in the 1960s. Learned in Jan'08 that our genetic mutation is SDHB Deletion.
My yuku Posts
| Title | Type | Date |
|---|---|---|
| Re: Mayo or NIH (or maybe U of Iowa) | Reply | 12/04/09 |
| Re: time frame for genetic testing | Reply | 11/25/09 |
| Re: Finally, genetics testing | Reply | 11/12/09 |
| Re: Finally, genetics testing | Reply | 11/10/09 |
| Re: Genetic Testing Results | Reply | 11/10/09 |
| Re: Please help....How serious can SDHB be if it is not monitored??? | Reply | 11/05/09 |
| Re: Please help....How serious can SDHB be if it is not monitored??? | Reply | 11/04/09 |
| Re: Don't poke it! | Reply | 10/26/09 |
| Re: I need some guidance please!! | Reply | 10/22/09 |
| Re: Adrenal tumour that's just a tumour? | Reply | 10/11/09 |
